Wednesday, August 14, 2013

Our Great Camp Adventure for Sick Kids!

It's well know that I have some pretty awesome friends!  I would like you to meet a couple of them:

Cecilia, Carla, Roberta, Marklin (and me)!

And together we will be participating in the Canaccord Genuity Great Camp Adventure on September 28th.
Our fundraising dollars will be donated to The Possibilities Fund at Sick Kids.  This fund is available for urgent needs, including providing the best and most innovative care to patients, whether they are critically ill, injured or living with a chronic condition.  This fund allows Sick Kids to invest in research projects so that scientists can change the future of kids' health, and to train doctors who care for children across Canada and around the world.  The Possibilities Fund supports people, programs, equipment and physical infrastructure, and allows SickKids to continue to be the exceptional place it is. 

Why are we doing this?
Because we LOVE to exercise?  Hahaha!--Clearly NOT!  So why did my friends jump at the chance to walk 20km? I am sure each of them have their own reasons, these are just two of them:

Cecilia's son, Anthony was diagnosed with hodgkin's lymphoma cancer when he was 13 years old.  At the Hospital for Sick Children, he received aggressive treatment and we could not be more thrilled to report that he has been cancer free now for almost 4 years!  Anthony is a Survivor!

As for myself, well many of you know my girl, Alexa was diagnosed at 9 days old with citrullinemia(one of the Urea Cycle Disorders).  For the last 5 years, she has been followed so very closely by the metabolic doctors at HSC.  On July 18, the very best liver transplant doctors gave her another chance at life.  They transplanted a portion of her father's liver into her to cure the effects of living with citrullinemia.  The coordinators, nurses, doctors and surgeons are amazing.  Each and every one of them ensuring that we had (and will continue to have) the VERY BEST CARE during the long road ahead.  Alexa has (and still is) a participant in many trial studies that are available only with these types of funding.

Without the funding, there is no more research, no more hope!

I hate more than anything that we have to rely on Sick Kids Hospital, but I am so very grateful that they are there for us.  Without them, Alexa might not be with us today.

We walk so that one day there is no hodgkins lymphoma.  
So that one day there will be a cure to the genetic mutations that cause urea cycle disorders. 
So that one day in the not so distant future, kids can be kids--happy and healthy! We have hope!

So what exactly is this?
It's an up to 20 km challenge-by-choice adventure walk.  We will go at our own pace and participate in ultimate camp adventures along the way...
I am not going to lie, walking 20km scares me--I have never done it before.  I have trained for 10km runs but walking for 6-8 hours seems so much more daunting to me.  And then I think of Alexa and Anthony, and all that they have been through to overcome their medical conditions.  And well if they can endure all they have and come out smiling, we sure as hell can make the 20km.  Even if I have to crawl across the finish line, I will do it for them!

How can you help?
We would be ever so grateful for any donations.  Small donations add up, and if we can donate enough to get the research coordinator and scientists in the laboratory for even one more hour, then this is all worth it!  If one child is able to get one more hour of physiotherapy or occupational therapy, then this is all worth it! If one more piece of equipment is able to be purchased, well then, this is all worth it!

If you are able to do so, please click on the link below to be directed to my personal page:

Or you can support our team of wonderful ladies (A & A's cabin) by clicking on the following link:

Finally, we would LOVE, LOVE, LOVE, if you would come out and cheer us on!  Smiling faces and familiar voices at the 15th kilometer, may be just the push we need to make the final stretch!

If you would like more information on the event, please click here:

As always, THANK YOU so much for all your continued support!

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